Today was perhaps one of the most emotional days we have had. If it can be avoided, never speak with Neurologists. The uncertainity of her condition took its toll on Jess, and as a result, I ordered 24 ounces of fat tire and sent her to bed early. She is staying at the Ronald McDonald house with her sister, Kathleen.
I just woke to alarms over here and busy nurse activity. Emerson's blood pressure dropped. It went below Doctor Webster's standards of 80 systolic with a mean of 55. Albumin, a kidney drug, was pushed as overall fluid to help raise her blood pressure. Emerson responded like a champ, and she is well above her minimum. The good news is that she is didn't need any real blood pressure pressers like epinephrine or norepinephrine or dopamine. Her current low level intake of dopamine is purely renal and maintenance at this point and she continues to be off all pressures for blood pressure.
I don't think that tonight's drop was a set back, merely a bump in the road with trying to reduce her overall fluid intake. They measure everything at PICU and we will get updated as to the progress during rounds tomorrow. Rounds for the floor start at 9, normally concluding around 11.
Doctor Webster is weening Emerson off of platelets also. They will be replaced with Albumin for her kidneys. I'm not sure if the dosages in volume are equal or what the plan will be.
I keep waking up hoping her swelling has gone down, it seems so painful. She really doesn't look like her self either. It is going go be a long recovery.
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